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Hospital today. Second follow up Sarcoidosis appointment. Thought it was going to be a routine check up where they said "Yup, X-rays fine, breathing tests good, come back in a year or so" Instead was told that while most tests were good, (110% of predeicted capacity or above) one had come back at only 60%. This combined with further study of X-rays means that I may after all have growths in the lungs. Which could mean a minimum of 6 months of serious steroid treatments. Not at all what I was expecting or needing to hear.
Keep remembering that when I went for the last lot of breathing tests the machinery had been set up wrong and the nurse was having real difficulty getting a result for one of the tests and I think it was in fact that one. So it might just be a case of an unreliable test (the doctor said that that was the least reliable and if it had even been at 80% he might have ignored it, but at 60% he just couldn't) And I've had no breathing problems or tightness or anything noticcable, so it might be alright. Although on the other hand I've been exhausted a lot recently, so that might be sarcoid-related fatigue. Although I've been not sleeping properly and keeping weird hours so that's possibly only natural. And that's usually about the point where I get myself tangled up in the if's and the maybe's and try and stop thinking about it. So even more tests, and trying to decide whether ot not to quit smoking (it won't actually effect the disease in the slightest, but part of me wants to just to feel like I'm doing something, but then again I don't know that I can take the stress right now)
In other news, car decided to do it's old trick last night of snapping the alternator belt and sending the brakes to hell. Thought it had been finally trained out of this a year ago. Was going to drive into the garage (brakes not entirely gone, just quite poorly) but the heavy rain and panicky shakes made me feel that this was not entirely a wise move, so called the nice RAC man out instead (not the one that lives 2 doors down cos it was his day off) He replaced the belt but pointed out that the alternator was extremely stiff and wheezy. Therefore bad news - need to take it into garage tomorrow to be looked at. Good news - hopefully this will mean it behaves itself from now on. Extra good news - at least it didn't happen halfway down the M1 in the middle of Sunday's heatwave.
So all in all not a good day. Have cheered myself up by means of a nice bottle of Tia Maria (I don't actually feel like drinking at the minute but knowing that it's sitting there in a friendly manner is nice) Have also been cheering myself up greatly by feeding Kris pixie stix and watching him bounce around the house like a demented spider monkey.
Keep remembering that when I went for the last lot of breathing tests the machinery had been set up wrong and the nurse was having real difficulty getting a result for one of the tests and I think it was in fact that one. So it might just be a case of an unreliable test (the doctor said that that was the least reliable and if it had even been at 80% he might have ignored it, but at 60% he just couldn't) And I've had no breathing problems or tightness or anything noticcable, so it might be alright. Although on the other hand I've been exhausted a lot recently, so that might be sarcoid-related fatigue. Although I've been not sleeping properly and keeping weird hours so that's possibly only natural. And that's usually about the point where I get myself tangled up in the if's and the maybe's and try and stop thinking about it. So even more tests, and trying to decide whether ot not to quit smoking (it won't actually effect the disease in the slightest, but part of me wants to just to feel like I'm doing something, but then again I don't know that I can take the stress right now)
In other news, car decided to do it's old trick last night of snapping the alternator belt and sending the brakes to hell. Thought it had been finally trained out of this a year ago. Was going to drive into the garage (brakes not entirely gone, just quite poorly) but the heavy rain and panicky shakes made me feel that this was not entirely a wise move, so called the nice RAC man out instead (not the one that lives 2 doors down cos it was his day off) He replaced the belt but pointed out that the alternator was extremely stiff and wheezy. Therefore bad news - need to take it into garage tomorrow to be looked at. Good news - hopefully this will mean it behaves itself from now on. Extra good news - at least it didn't happen halfway down the M1 in the middle of Sunday's heatwave.
So all in all not a good day. Have cheered myself up by means of a nice bottle of Tia Maria (I don't actually feel like drinking at the minute but knowing that it's sitting there in a friendly manner is nice) Have also been cheering myself up greatly by feeding Kris pixie stix and watching him bounce around the house like a demented spider monkey.
